spika / is on Nostr

"6d3e8cf54853f5c70dc359995473b2c10a890834d1630bb2fe2b750dd7babe58de1f09e6f2bfdc0b4a920915f916416ecf462e31621463fd3adacb1beda8f91f"

Last Notes

2024-10-22 16:31:37

I'm realizing one of the reasons I'm struggling with getting my room clean is because to be able to put away my clothes, I feel like I need to temporarily cover my bed with clothes in order to sort them, but I'm completely unwilling to sacrifice the ability to lie down in my bed to regulate at any moment, so the task feels impossible because all other options and ideas to sort clothes feel wrong.
#actuallyautistic @npub1rec…pqjh

2024-06-23 20:57:25

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@npub1d7m…p4lp As a fellow Northern New Englander... I really don't like this.

2024-06-23 20:57:25

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@npub1d7m…p4lp As a fellow Northern New Englander... I really don't like this.

2024-06-01 01:28:46

Some days autism is seeing your friend has a new haircut and being disproportionately upset because they don't look the same.
@npub1mew…tau6 #actuallyautistic

2024-04-06 09:40:10

Feeling like you're being misunderstood sucks. Especially when what you were trying to say got lost when the person you were talking to infered a meaning you didn't intend and responded with hurt and argument instead of the compassion you expected.
And both being autistic, you don't know when to just let it go and regulate and try talking about it later, and now another night's sleep has been lost to dwelling on all of it.
Sigh. I'm tired.
#actuallyautistic

2023-10-12 19:55:53

My dude told me he had a meltdown in McDonalds this morning. The store was understaffed and didn't have a person working register, and they were only taking kiosk orders inside.
He gets told this after waiting at the counter for twenty minutes. No offer to help, just told to use the kiosk.
Except, there's a problem with this.... He doesn't know how to use the kiosks. He finds them overwhelming, panic inducing and he's extremely afraid something will go wrong in the process of using one. So, he doesn't ever use them and finds the mere suggestion upsetting.
So, he started to have a meltdown about being required to use the kiosk, got very short with the employee who told him he had to use it, and went to leave without buying anything because he didn't want to be having a meltdown in public, when another employee intervened offering to help.
He didn't really want the help at that point because he was melting down and having trouble talking and just wanted to leave, but he did want food so he let her help and they got through the transaction the old fashioned way in person at the counter.
But not without him feeling deeply ashamed and embarrassed because he isn't able to use a McDonalds kiosk on his own or ask for help without being visibly upset about being asked to use the kiosk in the first place.
It's a story I share because I feel like it's the sort of thing that's an underrepresented experience within online conversations about autism and the autistic experience because I feel like the more common sentiment I see is how the kiosk ordering is great because you don't have to talk to a person.
I think an area of accessibility where many of us have a huge ableist blindspot around is how difficult an allegedly "easy" form of technology can be for some autistic people who don't have a lot of familiarity or comfort around tech.
@npub1mew…tau6 #ActuallyAutistic #autistic

2023-08-18 16:50:57

So, I guess this is my introduction post...
This is a secondary Fediverse account that I've set up specifically to talk about mental health related stuff.
I was late diagnosed with #ADHD in my mid 20s, diagnosed with #PTSD in my late 30s, and after a hospitalization in February, the possibility was raised that I might be #autistic as well... Formal evaluation isn't something that's been discussed yet, and I'm still trying to figure out if that's something I want to pursue or if self-Dx is enough or if it was just a suggestion that a professional made that had no merit.
I'm an #artist and was formerly employed in the tech industry.