Anna / is on Nostr

I’m severely #disabled by #ChronicIllness.

I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off with #LongCovid. Hi #NEISvoid

Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking patients?)

Need help with #accommodation #NDIS #GP #carer/ #caregiver & navigating the system. LMK!

Last Notes

2024-05-23 21:20:28

There’s a lot of things I don’t understand, but here’s just one:
#Covid killed over a million people in the US and is still going strong.
Why does nobody talk about it?
That’s roughly 1 in 300 people.
You would know at least someone who died of it. Is it mass trauma?

2024-03-06 14:37:09

If I knew another person with severe chronic illness who lived nearby that would be quite excellent.
Where are they hiding?
#Melbourne #Australia
@npub1x4n…7h77
@npub1pnl…a6yx

2024-01-06 13:23:40

This person will not stop following me around on platforms and harassing me. She called me a liar on Twitter, told me I should go into aged care on blue sky, and now she’s here.
She signed up on Mastodon and one of her first 2 posts is to me on Aus.social!
Am warning people here.
Go away! 😟
https://assets.disabled.social/media_attachments/files/111/709/194/543/529/986/original/a53b93e1ea253ee5.jpeg
https://assets.disabled.social/media_attachments/files/111/709/194/543/529/985/original/df7005ac43bb4463.jpeg

2023-12-22 22:46:47

I desperately need an #advocate. If you are able to help, let me know. #Melbourne best but anywhere in #Australia is ok you can dial into any meetings.
Please ask around. Maybe you know someone who’d be willing to help? You never know who you know.
Yes I‘ve checked all the lists. There’s nobody available.
Please boost. 🙏
#ChronicIllness
@npub1x4n…7h77
@npub1ps6…80vw
@npub1pwh…t6jl
#lawfedi

2023-12-04 06:05:12

- reply

@npub1rrp…nv23 So much for ‘Crip Christmas’. How does that happen? I hope you got home ok.

2023-12-03 19:24:47

Was it #InternationalDisabilityDay?
What did we get? I got rejected by every single GP I asked for treatment and have a stress period.
How about you?

2023-10-20 21:48:54

Anybody heard of Dr Catherine Algie in pain management?
Is she any good?
In #Melbourne #Australia
#ChronicPain #MECFS #LongCovid #Endometriosis
#NEISvoid #Migraine #TrigeminalNeuralgia #PWME
#ChronicIllness
@npub1365…mnqk @npub1gxp…8dpd @npub18fz…hy22 @npub1ln5…yll8 @npub1ggg…fu7p
@npub1x4n…7h77

2023-09-17 00:03:29

Please help me find a #GP/any #doctor willing to prescribe #fentanyl patches (or dose equivalent) within 6 days in #Melbourne #Australia
Refused meds by GP who promised to prescribe until I found a new GP (he dropped me bc my case is too complex). Changed his mind! Now have 6 days to find any doctor to write a script or #withdrawal agony & no #pain control.
Time running out fast!6️⃣ DAYS 😫
#Boosts helpful!
#ChronicPain
@npub1365…mnqk @npub1gxp…8dpd #MECFS
#PwME #MedMastodon
@npub18fz…hy22 @npub1x4n…7h77

2023-09-02 21:39:40

‼️➡️ Please help me find a #GP or any #doctor willing to prescribe #fentanyl patches within the next 20 days in #Melbourne #Australia
Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 20 days to find any doctor to write a script or #withdrawal agony for me & no pain control.
Time running out fast.😩
#ChronicPain
@npub1365…mnqk
@npub1gxp…8dpd
#SevereME #Medicine
#MECFS #MedMastodon
@npub1x4n…7h77
@npub18fz…hy22

2023-04-19 13:35:08

Must #crowdfund.
An expensive #healthcare year is underway.
One Magnesium+Hartmanns IV is $500 each & need at least 1 a month. No #Medicare rebate.
THEY GET ME OUT OF BED
Can’t use public system right now due to medical neglect but I’m queued to see gateway specialists (minimal/no rebate).
If you can help:
http://www.buymeacoffee.com/halcionandon
 Or
https://www.beem.com.au to @npub10a2…j7f3 fee free!
Please #Boost 🆙⬆️
Much appreciated💜
#MutualAid #DisabilityCrowdfund #ChronicIllness #POTS
@npub1shp…v9ff