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2024-01-27 20:26:31
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Rhyothemis on Nostr: npub1skvad…laky3 Fajgenbaum's story is really fascinating, and I think, ...



Fajgenbaum's story is really fascinating, and I think, instructive.

He pointed out to his oncologist the pupura that would appear right before a disease flare; his dr's response was it was nothing to worry about. But Fajgenbaum was not 'worried' about them, he was pointing them out since they might indicate something about the disease process. The appearance of the pupura were what lead him to anti VEGF therapy as a means of suppressing flares.

The above is from memory, and I don't have time to review, so my apologies if incorrect.

I think it was this interview that I saw, but YT says I have not watched it -
https://youtu.be/EEZpppBFj5Q?si=N0CpznI3aWoMQC-q
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