ahimsa on Nostr: I've got a new doctor (old one retired) At my December appt. I talked about my ME/CFS ...
I've got a new doctor (old one retired)
At my December appt. I talked about my ME/CFS symptoms & gave him a copy "Diagnosis and Management of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome" (link below)
At some point my doc said, "You must have a very severe case!" My response was no, severe cases are often bedbound, tube fed, etc
I'm too sick to work but I'm moderate. Doctors don't realize how severe ME/CFS can be
https://www.mayoclinicproceedings.org/article/S0025-6196(23)00402-0/fulltext#MEcfs #CFS #PwME #MyalgicEncephalomyelitis
Published at
2024-01-03 22:58:50Event JSON
{
"id": "54f049e2604cfa1ea82f8a6935bfc90dfbbbefb8c43be6f700f1048f7300b46f",
"pubkey": "bf0dcb84b79f284b97cdd684679be31ce45da79d9dc114dfaa7bbbf5aa492315",
"created_at": 1704322730,
"kind": 1,
"tags": [
[
"t",
"mecfs"
],
[
"t",
"cfs"
],
[
"t",
"pwme"
],
[
"t",
"MyalgicEncephalomyelitis"
],
[
"proxy",
"https://disabled.social/users/ahimsa_pdx/statuses/111694494445723929",
"activitypub"
]
],
"content": "I've got a new doctor (old one retired)\n\nAt my December appt. I talked about my ME/CFS symptoms \u0026 gave him a copy \"Diagnosis and Management of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome\" (link below)\n\nAt some point my doc said, \"You must have a very severe case!\" My response was no, severe cases are often bedbound, tube fed, etc\n\nI'm too sick to work but I'm moderate. Doctors don't realize how severe ME/CFS can be\n\nhttps://www.mayoclinicproceedings.org/article/S0025-6196(23)00402-0/fulltext\n\n#MEcfs #CFS #PwME #MyalgicEncephalomyelitis\n\nhttps://assets.disabled.social/media_attachments/files/111/694/475/670/703/008/original/99481e09138a7feb.png",
"sig": "01f94e78411e23cee9ce30d6fb03ab21d85f0645a6c42f22a229b5241f1a7c23cf7086d4d6fdcc51d598fff025549ab0eb9fab9030e5460847cc2808b7cce6f8"
}