its #MEAwarenessDay and it seems fitting that we had a fatigue flare strong enough that we practically doubled our normal time spent asleep, likely from doing too much yesterday.
there is no treatment, no cure, an average diagnosis time of 8 years, a quality of life often as poor or poorer than late stage cancer or congestive heart failure, and those of us that dont have family to care for us are essentially fucked when it comes to surviving with this illness.
#MEcfs is no joke
natalya et alia /
npub1x7…fjah8
2024-05-12 20:53:41
Author Public Key
npub1x7n060muczcvtnqt2sfdasf70jw4ny280paxqzqntj29xpemv94qrfjah8Seen on
wss://relay.nostr.bandPublished at
2024-05-12 20:53:41Event JSON
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