My last tip is deep breathing and meditation. When a late night MCAS attack hits - it can feel almost identical to a panic attack. This is because of the adrenaline that’s being released along with histamine & other mediators. It’s incredibly scary until you get used to it
It’s important to remember that it’s an MCAS attack & it WILL pass. Keeping the brain calm is integral to calming the body. If prone to anaphylaxis you should have a safety plan with your medical team - but in the absence of life threatening symptoms I focus on being calm
Meditation, deep breathing, repeating a mantra… all of these things can be helpful. I focus on the breath & remind myself over and over that I’m safe & calm. Eventually my nervous system gets the message and begins to calm.
Meditation did not come easy - and there were times it felt futile and impossible. But I can promise the more you practice it the more effective it becomes. Most nights it’s second nature & I calm faster than I did without it.
MCAS can be a very difficult condition to manage and is highly individualized - so just remember what works for me may not work for others. There’s a lot of trial & error that’s required & being patient and kind to yourself is key to success
Remember that flares aren’t your fault - and sometimes we can do absolutely everything “right” and avoid every trigger and still end up in a flare cycle. It will pass. Remind yourself that. Reach out to friends & online community for support. It does get better
Epilogue: I wrote this after a week of nightly flares - I hope it helps others know they’re not alone but it was also to remind myself that this WILL pass. I’ve been dealing with it for years and it still overwhelms sometimes. 2/2
Broadwaybabyto /
npub1ll…8pa5s
2024-05-27 02:55:57
in reply to nevent1q…uqu8
Author Public Key
npub1llpk8d2y7t2mecc93rwufl9ta42qu400cn977c3v9wfl7sgmjhxsm8pa5sPublished at
2024-05-27 02:55:57Event JSON
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"content": "My last tip is deep breathing and meditation. When a late night MCAS attack hits - it can feel almost identical to a panic attack. This is because of the adrenaline that’s being released along with histamine \u0026 other mediators. It’s incredibly scary until you get used to it \n\nIt’s important to remember that it’s an MCAS attack \u0026 it WILL pass. Keeping the brain calm is integral to calming the body. If prone to anaphylaxis you should have a safety plan with your medical team - but in the absence of life threatening symptoms I focus on being calm \n\nMeditation, deep breathing, repeating a mantra… all of these things can be helpful. I focus on the breath \u0026 remind myself over and over that I’m safe \u0026 calm. Eventually my nervous system gets the message and begins to calm. \n\nMeditation did not come easy - and there were times it felt futile and impossible. But I can promise the more you practice it the more effective it becomes. Most nights it’s second nature \u0026 I calm faster than I did without it. \n\nMCAS can be a very difficult condition to manage and is highly individualized - so just remember what works for me may not work for others. There’s a lot of trial \u0026 error that’s required \u0026 being patient and kind to yourself is key to success \n\nRemember that flares aren’t your fault - and sometimes we can do absolutely everything “right” and avoid every trigger and still end up in a flare cycle. It will pass. Remind yourself that. Reach out to friends \u0026 online community for support. It does get better \n\nEpilogue: I wrote this after a week of nightly flares - I hope it helps others know they’re not alone but it was also to remind myself that this WILL pass. I’ve been dealing with it for years and it still overwhelms sometimes. 2/2",
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