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2024-07-25 00:23:27

Kōtare on Nostr: More than 20 years ago, the idea of developing a national health strategy for Rare ...

More than 20 years ago, the idea of developing a national health strategy for Rare Disorders in NZ was floated. Five years ago I joined the campaign to make it a reality. Today, Manatū Hauora ( the Ministry of Health) finally published it.

This is huge. It will likely not make the media today, but the impact will be felt for decades to come. I'm feeling rather emotional.

#RareDisease #RareDisorders #Healthcare

https://www.health.govt.nz/publication/aotearoa-new-zealand-rare-disorders-strategy
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