npub1u2vwrtzycscs56pxwmq7llk0p6s07egpxg58cvc7qgu3vr0vhszsf54999 (npub1u2v…4999)
Absolutely! And thanks for the article.
The parallel pursuit of treatments at higher levels as we chase cures (and treatments) at lower levels should happen, for sure. I recently had a very insightful conversation with an individual who has a rare degenerative disorder. A component of her patient advocacy is spreading the word to researchers that the pursuit of cures should not happen at the expense of pursuing treatments because treatments can vastly improve quality of life (and cures seem to be decades away).
In my mind, there is no singular right approach here. The notion that we (as a community) pursue multiple approaches in parallel (what some like to call "pluralism" and others like to call a "distributed portfolio") is the only thing that makes any sense. We need to play both the short and long game at the same time.
Of course each of us, as individual scientists, needs to make the decision about what we want to pursue ourselves (what we are most optimistic about and interested in, etc).
In my mind, tackling the degeneracy is probably the only route to cures. Whether this happens in my lifetime or not is very much TBD. What we do know is that we definitely won't make any progress if no one works on it.
Nicole Rust /
npub1cu…0zuw2
2023-09-07 12:10:04
in reply to nevent1q…wdjj
Author Public Key
npub1cud99prgj4etl597aaxthxenrcjmfxl92dgj8snf9a9p8ctupfyq80zuw2Published at
2023-09-07 12:10:04Event JSON
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"content": "nostr:npub1u2vwrtzycscs56pxwmq7llk0p6s07egpxg58cvc7qgu3vr0vhszsf54999 \nAbsolutely! And thanks for the article. \n\nThe parallel pursuit of treatments at higher levels as we chase cures (and treatments) at lower levels should happen, for sure. I recently had a very insightful conversation with an individual who has a rare degenerative disorder. A component of her patient advocacy is spreading the word to researchers that the pursuit of cures should not happen at the expense of pursuing treatments because treatments can vastly improve quality of life (and cures seem to be decades away).\n\nIn my mind, there is no singular right approach here. The notion that we (as a community) pursue multiple approaches in parallel (what some like to call \"pluralism\" and others like to call a \"distributed portfolio\") is the only thing that makes any sense. We need to play both the short and long game at the same time.\n\nOf course each of us, as individual scientists, needs to make the decision about what we want to pursue ourselves (what we are most optimistic about and interested in, etc).\n\nIn my mind, tackling the degeneracy is probably the only route to cures. Whether this happens in my lifetime or not is very much TBD. What we do know is that we definitely won't make any progress if no one works on it.",
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